Tuesday, August 18, 2009

Mariah's Trip

My father-in-law informed me of a distant relative today who has Batten disease, a very rare and degenerative disease. The following sites give you more information. There are videos on both sites, but the video on the first site listed is incredibly moving.


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http://www.wzzm13.com/news/news_story.aspx?storyid=112526&catid=14

We said good-bye to Mariah today, a girlfriend from Texas. Not easy. We enjoyed the city together while discovering the shops with Jimmy Choo shoes and many more designers I had no clue about. Shoes from $700 that looked like something from Target ;) and dresses from $2000. It was fun to look. Saturday we went to Playa Andres and Sunday afternoon Mariah and I left for a night to the north coast. We spent the night at La Catalina (http://www.lacatalina.com/) and admist the storm got a 2 hour window in the sun on the beach before heading home on Monday. She got to experience blackouts in our house, no computer or phone usage for most of the weekend even when we did have lights, and a short blackout in the grocery store. She's Dominican now!

1 comment:

Rob Geer said...

Thank you for posting the link to my son's page. We appreciate it when anyone helps spread the word about Batten Disease.

You mentioned we are a distant relative. How are we related?

Thanks again!
Rob Geer